So today Timehop had another reminder for me.
It was such a blow for me that day, my idea that morning was to see the oncologist who would tell me everything was going to plan and that my chemo would rid me of my cancer. However, as usual for me, it didn’t quite go that way. I was sat down, the doctor gave a huge sigh and said that this was the part of the job she hated. My cancer had spread and was, therefore, incurable. She promised me it could be managed and although she has since left my hospital, her promise has been kept. At the time, my only wish was to see my little girls first day at school and enjoy life more as I had no idea how long I would last (sorry a bit depressing)
But here I am 2 years later, with no further spread, after my chemo kicked the s**t out of it and reduced the mass on my pelvis, spine and hip to just a small amount on my pelvis and hip.
So I guess I’d better make some aims for the next 2 years!
- My sisters wedding and subsequent hen do’s (one of which I am allowed to plan)
- My little boy’s first day of school
- A big family holiday (we are more in the habit of weekends away then proper holidays, but this ends now)
- Carry on enjoying life (this will include wacky weekends away, meeting celebs and some other weird and wonderful things that crop up along the way)
So, to end I thought I’d share a photo from our first adventure of the year, Alton Towers (and Cbeebies Land).
So as I am sure you are all aware, I have recently had a mammogram, CT scan & an echocardiogram.
I received my letter in the post the other week regarding my mammogram & was happy to see the magical words “your recent mammogram shows no worrying features”. Honestly, I felt like framing it! It is one less thing to worry about & it is complete for another year. This is not to say I won’t still be checking myself but it does offer reassurance.
Secondly, yesterday I had my CT scan & echocardiogram results. The echo scan has come back normal which means I can continue with the Herceptin for another 3 months when I will need another scan. My CT scan has also come back ok, there is some debate over a vertebrae but my oncologist thinks it could possibly be scar tissue & isn’t majorly concerned.
So with my scans out of the way for a little while, today is was back to my regular treatment of Herceptin & Perjeta (can you believe it’s been 3 weeks since the last one!). Fortunately, all went well & I will just be feeling a little tired for the next couple of days
Well, Wednesday is drawing to a close. I’ve completed 4 of my 6 appointments for the week and my cold is finally starting to clear off.
So here is a round up of the week so far
Monday- Nurse- taking bloods ready for treatment on Wednesday
Breast Consultant- beginning to look at reconstruction or some sort of surgery but this is dependant on the oncologist
Tuesday- Day off
Wednesday- Oncology Nurse- Check up and arrange CT scan and Echocardiogram, she has also ok’d surgery but has to double check with the oncologist and we discussed me taking Flaxseed (apparently it can help suppress cancer cells if you take 1-2tsp a day so I’ve ordered some to be delivered tomorrow)
Nurse- Herceptin and Perjeta- 3 weekly top up, this usually takes around 3 hours (including observation period)
Well, I’ve not got my week off to a great start. Have not been feeling very well for the past couple of days & after my routine blood test came back fine, it seems it is all down to exhaustion.
Starting to feel more myself now so hopefully tomorrow I’ll be back to normal (whatever that is).
Bloody typical when I’ve got a busy week ahead. I’ve had the nurse out this morning to take blood ready for treatment on Wednesday & had an appointment with my breast consultant. Got the day off tomorrow then it’s off to see the oncologist Wednesday morning and Herceptin & Perjeta in the afternoon. Thursday is a medicine review at the GP & Friday is my yearly mammogram. Saturday I’ll probably be collapsing in a heap & trying to do as little as possible.
On the bright side though, Evie picked me some beautiful daffodils from the garden
Can’t believe it’s been so long since I last posted an update.
So much has gone on since last time. My new drugs appear to be working and I am now showing some signs of the menopause (mainly hot flushes) and the cancer marker in my blood is reducing. I have had to give up my job due to being too tired (working as a cleaner probably wasn’t the best idea). Although I do still get tired, I am able to rest more and do some more things to help me relax, such as scrap-booking and some trips out.
This past weekend has also marked 2 years since my diagnosis!
Yes, you read that right 2 YEARS!!!!
I honestly never believed that I would still be here 2 years later and feeling quite well for it. Last week in the lead up it was tough, but I have tried my best to stay positive, thinking about how far I’ve come and how well I am considering all of this. I am still very much alive and kicking (cancer’s butt). You will also be happy to hear that I (well my hubby and mother in law) are still using the “C” card. The most significant one was at the weekend when my hubby had arranged a shopping trip with a personal shopper, I got a free makeover, my nails done and an arm massage for free. My mum in law and me had an amazing time, am already saving up to do it again!
Only real complaint I have at the moment is this cold weather we are having. I know, I sound like an old woman but I really do feel the cold and it really makes my joints ache, especially my hip. But every morning when I leave the house, I am reminded that spring is on it’s way with the lovely daffodils and hopefully some tulips soon.
Well that’s enough of my ramblings, I promise to keep you up to date more often.
This morning I went into the hospital to see my oncologist & get the results of my bone scan.
The results were good & there is no significant growth in any of my bones. There is a dot on my spine which will need a further MRI scan to identify exactly what it is but that is all. In light of the changes in my blood (an elevated cancer marker), the oncologist has decided to change my medication from Tamoxifen to Letrozole & Zoladex. This combination should suppress some of the hormones which my cancer feeds on. I have included some links below if anyone is interested in learning a little more about them.
Today I have visited the hospital for a bone scan.
Unlike most scans, which are over pretty quickly, a bone scan usually takes up a whole afternoon.
I arrived at the hospital around 12:30 for the first part of my scan. The normal procedure, due to my age, is a pregnancy test and then I was given an injection that is radioactive to highlight particular areas in my bones. After this, I am free for around 3hrs as this gives the injection time to work its way around my body.
So I wasn’t hanging around the hospital all afternoon I arranged to go Christmas shopping with my sister (she also came to the hospital with me).
After some lunch and a good bit of shopping, we headed back to the hospital for the second part of my scan. This is where I have the actual scan. I am required to lie down and stay perfectly still for half an hour while the camera scans over my body, this is then followed by some more shorter scans to cover any parts of interest or that haven’t taken very well.
With all that done, it was time to head home. However, I am still radioactive and cannot have any prolonged contact with my babies until tomorrow afternoon 😔
Am due to results next Wednesday so I’ll keep you all up to date.
In the meantime here is a couple of videos explaining the process