Can you believe it’s been 10 days since my last radiotherapy session!
There are a few things to report
- I don’t need to use my clutches at the moment (useless I’ll be walking a lot)
- The skin around my hip seems to be fairing quite well
- Internally though, I am currently taking antibiotics for a urine infection & it may have started up my IBS again (had a quite badly for a few years but it seemed to disappear after having children). This means I, now, have a lovely new batch of drugs to take alongside my usual ones.
This is this morning’s drugs before breakfast
This includes Letrozole, sertraline, Adcal D3 caplets, trimethoprim & buscopan. Hopefully, after a few weeks & plenty of rest, things should go back to normal.
Right, I’m off for my morning cuppa. Speak to all soon! 😄
Sorry it’s been awhile and sorry that I seem to start most of my posts like this.
The results from my recent scans have come back to say there has been no further spread, which is always welcome news, however it didn’t explain why I am having pain in what is supposed to be my good hip. My CA-15 (tumour marker but also shows other things) keeps going up and down, so my oncologist suggested a weeks course of radiotherapy for pain relief and to blast anything that might be thinking my right hip would make a good home.
This was all a few weeks ago so after a preparation scan and a little holiday to Suffolk, I am now 2 out of 5 treatments of radiotherapy down and feeling it! Due to the hubby’s work commitments and my 2 little monkeys, strong pain relief is out of the question. I am relying on Nurofen joint pain and crutches (could have done with them last time however they weren’t available from the hospital. Got myself a really cool pair that are pink with a pretty flower pattern, but I’m digressing slightly).
My cool crutches
The one thing that surprised me was that changes in self-care when having radiotherapy. For instance, when I had it a couple of years ago, we were told to liberally apply aqueous cream however now I am to only use Simple shower gel when washing and no cream until after the treatment has finished as it can create too much of a barrier and the therapy could be less effective.
Here is a link for anyone who is interested in finding out more about radiotherapy for pain relief (http://www.cancerresearchuk.org/about-cancer/cancers-in-general/treatment/radiotherapy/symptoms/radiotherapy-for-bone-pain)
So that’s me all up to date and included one of the many photos from my holiday
On one of the Facebook pages I follow, woman was expressing her disappointed in having her radiotherapy delayed from Thursday to the following Monday. As someone who has experienced this, I suggested that she look at it from the perspective that at least she can be delayed & that I often felt, after speaking to other patients, that I had got off lightly. Although the woman in question agreed, it became quite a strong talking point. One woman saying that because we have all had cancer we should never feel as though we have got off lightly.
Throughout my treatment I have tried my best to stay positive & have been very humbled by some people. The people that struck me the most were the ones I met in chemo. One man had had 18 months worth of chemo only to be told it hadn’t worked as effectively so he would have to have it for the rest of his life & another who had to go in every 2 weeks for blood transfusions.
This can be transferred to many different areas of our lives. I completely agree with the idea that “everyone is entitled to their own opinion” but isn’t it better to look at things from the glass is half full perspective then the half empty perspective?
After watching some of the interviews Lynda Bellingham has done recently and hearing some of her funny stories, it made me think about some of the funny things that have happened to me since my diagnosis. There have been so many situations that I have found myself in that just would not have been the case if I wasn’t ill. This has now prompted me to share some of these with you, both now and in the future. So here goes!
My first happened just the other month when my sister and I went to see Lee Evans at the NIA. I’m sure you are all aware of how profusely he sweats on stage, well it was hardly surprising, as the arena was so hot and there was no air conditioning. As it was a night out, I had decided to wear one of my wigs and by the interval I was a mess. Try as we might, we couldn’t get a drink from anywhere as there were so many people. When we finally found a shorter queue we were told that they were not letting anyone else in at that time but we could wait. By this point I was so hot and bothered I decided enough was enough, the wig had to come off (fortunately I had a head scarf in my bag). Well I’ve never seen the security move so fast “What sort of drink did you want?”. “Anything. Water, any soft drink. I don’t care” I replied. We were then rushed through to get our drinks and they apologised for making us wait. I couldn’t believe it and I tell you one thing, if I’d known that earlier I would have bloody played the cancer card then! The funniest thing was I only took my wig off because I was too hot, I had no intention of it drawing any attention, let alone get us some drinks. God only knows how anyone else around us reacted, would have been funny to see.
My second story is more of a conundrum. As I have said many times before, cancer is not glamorous and dignity is a distant memory. The other day as I preparing myself I was told that two male nurses would be preparing and positioning me ready for treatment. I was given the option of female nurses, however it might mean having to wait until one was available. I gave it some thought and it occurred to me, what is the point? My boob is swollen and bright red, my arms are held up like a puppet and I have a wonderful bit of yellow plastic holding my chin up. If anyone found that attractive, they had bigger problems than me! I ended up telling them to just get on with it so I could go home.
Yesterday was the first day of my booster week, which means I am now coming to the end of my radiotherapy.
To say I’d be relieved is an understatement. I am beginning to get very tired and I still have a bad throat which makes it difficult to shallow.
The booster week is not as intense as the rest of the radiotherapy so it is a nice way to end the treatment. Although I have been told that it will continue to work for the next 2 weeks and then I will be left for awhile to recover. I will still be seeing my oncologist every 3-6 months & breast care every 6 months but I will be having a break from the more intense treatments.
On a brighter note, we’ve booked a family mini break for December. It will be such a lovely end to what has been a roller coaster of a year and I am really looking forward to it.
Fear not, I haven’t forgotten you all. Been so busy lately & the radiotherapy is starting to tire me out.
Radiotherapy is going relatively well. I’ve reached the halfway mark and my skin is fairing well. Only problem is that the radiotherapy has caused me to have a very sore throat. I’ve been given so medication & some special mouthwash that should help.
On a brighter note, I’ve started using a special shampoo & conditioner called FAST. It’s supposed to stimulate the hair to grow quicker. I must admit I was slightly sceptical of it but after reading numerous reviews (all of which were good) I thought I’d give it a go.
I’ve probably been using it for a week & so far there has been some improvement. So I have decided to post a couple photos of hair as it is today & then I post another set in around 4 weeks time so you can help me to decide whether it is working.