Sorry it’s been awhile and sorry that I seem to start most of my posts like this.
The results from my recent scans have come back to say there has been no further spread, which is always welcome news, however it didn’t explain why I am having pain in what is supposed to be my good hip. My CA-15 (tumour marker but also shows other things) keeps going up and down, so my oncologist suggested a weeks course of radiotherapy for pain relief and to blast anything that might be thinking my right hip would make a good home.
This was all a few weeks ago so after a preparation scan and a little holiday to Suffolk, I am now 2 out of 5 treatments of radiotherapy down and feeling it! Due to the hubby’s work commitments and my 2 little monkeys, strong pain relief is out of the question. I am relying on Nurofen joint pain and crutches (could have done with them last time however they weren’t available from the hospital. Got myself a really cool pair that are pink with a pretty flower pattern, but I’m digressing slightly).
My cool crutches
The one thing that surprised me was that changes in self-care when having radiotherapy. For instance, when I had it a couple of years ago, we were told to liberally apply aqueous cream however now I am to only use Simple shower gel when washing and no cream until after the treatment has finished as it can create too much of a barrier and the therapy could be less effective.
Here is a link for anyone who is interested in finding out more about radiotherapy for pain relief (http://www.cancerresearchuk.org/about-cancer/cancers-in-general/treatment/radiotherapy/symptoms/radiotherapy-for-bone-pain)
So that’s me all up to date and included one of the many photos from my holiday
When you usually see cancer, it is in adverts or leaflets. It is censored and made to look comfortable for its viewers. The article below is about a series of images that depict real people living with very real cancer. So are funny and some aren’t but this is the reality. I’ve even included one of my old photos to this post
So yesterday was a fairly busy day.
Firstly I had a hair appointment, which I was very excited about as I could actually choose the style (what I had been going for before or a bob cut). It is lovely to be able to have the option, usually I just have it styled to help grow it out so I opted for a bob cut. It’s still a little short in place but as soon as the hairdresser put in the fringe, it looked perfect and I am so happy with it. I also captured some photos to show you all.
Secondly, I completed my 3rd Race for Life with my friend Kate and her daughter Megan. To say I was nervous, was an understatement, I was petrified! My idea to train and prepare myself went out of the window so I was really unprepared. However, we managed to get round in 49 minutes (Megan in 35 mins) and 24 hours later, I’m still here. My legs are really aching though and I was so tired I had to have a nap. So here is a photo of us just before we started (there is a photo as we crossed the finish line but it is not glamorous)
Well, that’s all to update at the moment. I’m off to get my 5th assignment ready to send off (hopefully this evening)
So today Timehop had another reminder for me.
It was such a blow for me that day, my idea that morning was to see the oncologist who would tell me everything was going to plan and that my chemo would rid me of my cancer. However, as usual for me, it didn’t quite go that way. I was sat down, the doctor gave a huge sigh and said that this was the part of the job she hated. My cancer had spread and was, therefore, incurable. She promised me it could be managed and although she has since left my hospital, her promise has been kept. At the time, my only wish was to see my little girls first day at school and enjoy life more as I had no idea how long I would last (sorry a bit depressing)
But here I am 2 years later, with no further spread, after my chemo kicked the s**t out of it and reduced the mass on my pelvis, spine and hip to just a small amount on my pelvis and hip.
So I guess I’d better make some aims for the next 2 years!
- My sisters wedding and subsequent hen do’s (one of which I am allowed to plan)
- My little boy’s first day of school
- A big family holiday (we are more in the habit of weekends away then proper holidays, but this ends now)
- Carry on enjoying life (this will include wacky weekends away, meeting celebs and some other weird and wonderful things that crop up along the way)
So, to end I thought I’d share a photo from our first adventure of the year, Alton Towers (and Cbeebies Land).
So as I am sure you are all aware, I have recently had a mammogram, CT scan & an echocardiogram.
I received my letter in the post the other week regarding my mammogram & was happy to see the magical words “your recent mammogram shows no worrying features”. Honestly, I felt like framing it! It is one less thing to worry about & it is complete for another year. This is not to say I won’t still be checking myself but it does offer reassurance.
Secondly, yesterday I had my CT scan & echocardiogram results. The echo scan has come back normal which means I can continue with the Herceptin for another 3 months when I will need another scan. My CT scan has also come back ok, there is some debate over a vertebrae but my oncologist thinks it could possibly be scar tissue & isn’t majorly concerned.
So with my scans out of the way for a little while, today is was back to my regular treatment of Herceptin & Perjeta (can you believe it’s been 3 weeks since the last one!). Fortunately, all went well & I will just be feeling a little tired for the next couple of days
Well, Wednesday is drawing to a close. I’ve completed 4 of my 6 appointments for the week and my cold is finally starting to clear off.
So here is a round up of the week so far
Monday- Nurse- taking bloods ready for treatment on Wednesday
Breast Consultant- beginning to look at reconstruction or some sort of surgery but this is dependant on the oncologist
Tuesday- Day off
Wednesday- Oncology Nurse- Check up and arrange CT scan and Echocardiogram, she has also ok’d surgery but has to double check with the oncologist and we discussed me taking Flaxseed (apparently it can help suppress cancer cells if you take 1-2tsp a day so I’ve ordered some to be delivered tomorrow)
Nurse- Herceptin and Perjeta- 3 weekly top up, this usually takes around 3 hours (including observation period)
Can’t believe it’s been so long since I last posted an update.
So much has gone on since last time. My new drugs appear to be working and I am now showing some signs of the menopause (mainly hot flushes) and the cancer marker in my blood is reducing. I have had to give up my job due to being too tired (working as a cleaner probably wasn’t the best idea). Although I do still get tired, I am able to rest more and do some more things to help me relax, such as scrap-booking and some trips out.
This past weekend has also marked 2 years since my diagnosis!
Yes, you read that right 2 YEARS!!!!
I honestly never believed that I would still be here 2 years later and feeling quite well for it. Last week in the lead up it was tough, but I have tried my best to stay positive, thinking about how far I’ve come and how well I am considering all of this. I am still very much alive and kicking (cancer’s butt). You will also be happy to hear that I (well my hubby and mother in law) are still using the “C” card. The most significant one was at the weekend when my hubby had arranged a shopping trip with a personal shopper, I got a free makeover, my nails done and an arm massage for free. My mum in law and me had an amazing time, am already saving up to do it again!
Only real complaint I have at the moment is this cold weather we are having. I know, I sound like an old woman but I really do feel the cold and it really makes my joints ache, especially my hip. But every morning when I leave the house, I am reminded that spring is on it’s way with the lovely daffodils and hopefully some tulips soon.
Well that’s enough of my ramblings, I promise to keep you up to date more often.